Category Archives: Cancer

Long Marriages: The Burnishing of Love

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© Bruce Allen               October 10, 2018

Relationships, over time, seem to become burnished, the colors changed and smoothed off around the edges. It is the evolving nature of the marriage relationship itself over time which produces this new appearance, this patina of age. It is accompanied at times by some sense of loss, but, in the best cases, maintains acceptance, understanding, kindness and friendship. It is what happens over 40 or 50 years, as lust grows into love which grows into commitment which grows into devotion. It is, in fact, something of a best-case solution to this whole marriage thing; it is rare—perhaps 3-4% of marriages get to the devotion stage—and therefore I consider it valuable. As is the sacrament that produced it and the foundational love that lives on.

A husband like me, whose go-to behavior (according to Strength Finders) is intellection, must try every day not to allow devotion to slip into The Unthinkable. My wife’s illness is with her every day; she’s with me virtually every day. As long as we Are Here Now things are good. Given her remarkable chemo results, it has gotten easier for me not to wander down the rabbit hole. This is clearly not the case for the majority of people with this disease or their caregivers.

When she first received the diagnosis, my wife and our oldest daughter sat down to build a CaringBridge site, which needed a title, which begat the wrist bands from Emily Taylor. My wife simply said it. “Healing, Hope & Courage.” It is, for the bulk of cancer patients, the chronology of one’s mentality, in three distinct phases, each jarringly giving way to the other over a painfully short period of time. The first two are accompanied by a rugged regimen of chemotherapy and its attendant side effects for six to 12 months. No one daring to connect the dots out loud. My wife determined to leave it in God’s hands.

Due, in my opinion, to the combined effects of chemotherapy, prayer, Losartan and quinine, my wife maintains the upper hand in her counter-attack against cancer. Winter will be hard on her, due to her neuropathy and sensitivity to sub-freezing temperatures. But we expect to get through it with relative ease. When the days are short and Christmas is a recent memory we can look forward to lighting the fire and being grateful for having survived another holiday season, both literally and figuratively, in the proverbial bosom of our family.

It is important for patients to have stuff to look forward to, things to keep on the calendar, things to keep them engaged and relevant. For us, it is a trip to Chicago, another to Seattle, before the mayhem of Thanksgiving and Christmas consumes us and all those around us for two months. My wife likes the bedlam caused by a bunch of grandcousins racing through the house more than I do, but it is great to have them all here. Our daughters, as expected, continue completely supportive of my wife, consistently committed. There are now six grandchildren who love themselves some Nanny and enjoy her company immensely. Even the older ones, whom one would expect to start becoming jaded. Remarkable testament to the modeling of good behaviors by their moms and dads.

We recently celebrated our 43rd anniversary on a short trip to New England. The weather wasn’t entirely cooperative and one of the primary destinations was kind of disappointing. I was a little put out, but Nancy found it easy to enjoy pretty much everything. Our 44th won’t be spent in Maine, but we look forward to spending it somewhere. It is only fitting that the photos from the schooner, in which memories of 2018 reside, be burnished, too.

Camden

Camden harbor from the schooner

Lobster boat edited

Lobsterman at work

What Four Decades of Marriage Does for You

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© Bruce Allen

This is a re-post from 2018 that I still like.

all you need is loveFour decades of marriage allows the two of you time to weave, with your kids and God’s grace, a family tartan of beliefs, values, standards and stories that will become part of their DNA and which they will, in turn, pass down to their kids.

It allows your relationship the opportunity to bloom, to struggle, and to emerge from struggle tempered, capable of withstanding decades of whatever the world throws at you. [It is during the almost-inevitable struggle stage, as kids arrive, that most marriages fail. To weather those storms requires commitment, which is bolstered by the fact that things tend to get easier as the children age and you can threaten to put them in iPad timeout.]

It allows you time to observe how your spouse likes things, things ranging from morning coffee to after-work drinks on the deck of a summer evening. Unless you’re a fool, you’ll do those things that way; it requires no extra effort.

It allows time to develop a sort of rhythm with your kids as they progress through school, a set of after-school routines that becomes standard and requires little discussion or negotiation. It allows them time to realize that the quality of their lives improves the closer they adhere to those routines. Studying, practice (sports and/or music), dinner together, free time, reading, prayer before bed, the whole deal. After a while they like it that way. Mostly.

It allows a steel bond to form between husband and wife that can withstand serious illness and show no signs of stress. Though the spouses themselves may experience stress, the relationship can shrug it off.

It allows time to influence the lives of grandchildren, should one be so blessed, and the luxury of having them around until bedtime, when it’s time to go bye-bye. Time to do grandparent things–coloring Easter eggs, decorating Christmas cookies, reading, playing on the floor. Getting one’s hair done by a four-year old.

It allows spouses to grow into an attitude where he or she is willing to give 60% in order to get 40% back. No 50/50 division of labor, no counting tasks​, no keeping score​. In a 50/50 relationship each spouse feels put out, as if he or she is doing more to support the family. In a 60/40 relationship each spouse expects to do more, and so it isn’t any big deal.

It allows time for traditions to evolve and get handed down. Our kids approach things like birthdays and holidays in the same basic way today they experienced them as kids. There are numerous variations of family or regional origin, all of which are good, all of which are variations on a theme.

cropped-sunset-lovers.jpgIt allows one time to, if necessary, drag one’s spouse to God. For which the spouse will ultimately be grateful.

It allows time for love to form in such a way that spouses learn to accept one another as imperfect people doing their best. To ascribe good intentions. To respect boundaries. To be happy to say, “You do you.”

Finally, it allows time for both of you to recognize and affirm that you spoke your wedding vows sincerely, believing every word at the time, and that you can gladly continue living them decades later. That you couldn’t imagine having lived without one another. That you did a fine job selecting a spouse.

These idyllic observations generally describe, somehow, our own family circumstances. Many people have far more complicated situations; I get that. People can only control things under their control. We have been greatly blessed. Beyond that, it’s important to keep praying and pray hard.

Marriage Blog Art

The Ties that Bind

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© Bruce Allen 2017

If you are fortunate enough to enjoy a predominantly happy marriage for decades, the fruit on the backside can be wonderfully sweet. Few people tell you this when you’re suiting up to exchange your wedding vows. In the beginning, you’re all eyes and skin and dreams, most of which don’t hold up well over forty years. In their place are these elegant moments that help us appreciate the life that is given to us and what we’ve done with it.

Even if we fall short of our dreams, there is something in me that says we’re allowed to, that it is the chase and the perseverance and the falling short that teaches us who we are. As seniors in our own family, we have the advantage of hindsight, and are still able to influence the thinking and behavior of our kids and grandkids. Those sweet, rare occasions when we make a positive, indelible impression on the life of a child are gifts beyond measure, especially to someone like me, whose main long-term concern is being forgotten by my family. I don’t give a rip about being forgotten by The World, just my own family. How to survive in people’s memory banks for longer than two generations. What will the grandkids’ kids learn about their Nanny and PopPop?

Here’s an insight. The stories they will tell about their Nanny will be funny and will emphasize her willingness to believe stuff, her loving, upright nature, her gentleness and consistency, her being there as a safe harbor when things might get tense with The Parents. Their stories about their PopPop will be about his generally futile attempts to corrupt them and his long, boring stories about when he was a kid. How he could bang on the piano and occasionally, quietly tell them inappropriate jokes.

Sweet. But as to our grandkids’ grandkids, probably next to nothing. Sad.

Another pleasure, a non-intuitive one, is having family responsibilities that one enjoys. There is no one I would want as Nancy’s primary caregiver more than me. I get to serve her, to drive her, to make things easier for her, some of which is scut work, at which I’m highly proficient, while some of it is “learned intuition,” knowing how she likes things, her meals and her schedule and so on. I am certain there are men she has worked with over the years whom she has dazzled with her Jersey and professionalism and insight and who must have wondered, at some point, “What must her husband have going on to keep up with HER?” Sweet. My goal–duh–is to relieve her of much of the drudgery, allowing her time and energy to heal, pray, snack and talk on the phone.

It was the right decision, to let our daughters survive their teens in order that they might someday present us with grandchildren. This sweetness I’m trying to describe is there again each time “the girls” (or their husbands) demonstrate good, loving parenting skills. Each time the grandkids reflect the receipt of good, loving parenting skills. Each time one of the grandkids complains that mom is more strict than the other moms. Each time they engage in the Movie Ratings Debate. “Why does it have to be PG?” “My friends have ALL seen it, and it’s only PG-13!” Each time they argue over after-dinner chores.

I can’t get enough of this stuff. This is exactly the kind of stuff about which Nancy was setting the bar 30 years ago and their moms didn’t like it then either but it was the right thing to do and PopPop would comfort them by suggesting they go write their congressman. What is left unsaid is, “And you’ll be happier and a better person as an adult if you ’embrace’ high standards as a child.” Best of all, I’m not even ALLOWED to get involved. Sweet.

So here we are almost 45 years later with glasses, skin that has sagged, and dreams constrained the way a football team’s playbook gets compressed in the red zone. Despite the challenges God has placed before Nancy and me, we have a seemingly endless source of these sweet moments, many of which are courtesy of our daughters and their families.

I was an only child and never knew my grandparents. I have become a big fan of this whole extended family thing, although I find it difficult to maintain over long periods of time. Short bursts are great; I’ve found I’m kind of a five day guy when I’m visiting. Here, in Hoosierville, kids and grandkids can stay as long as they want. There’s plenty of room, our local daughter’s family is somehow almost always available to get involved, and it’s all good. Plus I figure it’s important that they all get as much one-on-one time with Nanny as possible. Sweet.

This is the good stuff they don’t tell you about when you’re getting married. This is the stuff people need to know to survive those years when the kids are growing up and married life is way more work than fun. This is the kind of stuff that makes old age and arthritic knees and wigs such minor inconveniences.

These are the ties that bind.

Wedding Vows Revisited

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Marriage Blog Art.pngWe were married in late September 1975 in a small Catholic church in the New Jersey suburbs of Philadelphia. It was one of those steamy Indian summer Saturday mornings that hang around, wearing out their welcome, before the brisk, crisp notes of fall arrive in October. The church doors were open, and the bright lights focused on the altar made it even warmer inside.

I clearly remember Gilda Radner’s Rosanne Rossanadanna bit on SNL back in the day, with sweatballs dripping off the end of my nose as I stood, petrified and melting, in front of God and the world and made a bunch of promises for “all the days of my life.” I don’t remember much about the actual promises, vows we wrote ourselves. I’m pretty sure the “…for richer or poorer, in sickness and in health…” parts made it in there.

(To lower stress for everyone, I think the standard set of “I do’s” should be changed to, “Lord, I surely hope so.” If things were to fall apart down the road, the person might feel simply disappointed rather than branded for life in the eyes of God.)

With very few twisted exceptions, I cannot imagine a couple entering into marriage, sacramental or otherwise, without a fervent hope that they truly mean the words they are saying. They hope they’re telling the truth. I suspect wedding vows almost always feel like the truth, but the truth, from ground zero, is often difficult to discern.

Standard wedding vows include the “richer and poorer” and “in sickness and in health” clauses for the purposes of form only. Surely, if a couple finds themselves rich and healthy, it makes some things easier. For the poor and sick, who spoke the same vow, things, in general, are far more difficult. This would presumably include staying married, which can be tremendously challenging with little kids in a high stress environment.

Although we cannot know if we are lying or truthing on our wedding day, we get to find out later in our lives. Looking back, for me, proves several things. Nancy was telling the truth during the richer and poorer part, in that, though we’ve never been rich, we’ve been poor, and she never showed any signs of it eating into our marriage. During times in my life when I’ve been sick, she has been there for me. And now, as it turns out, I, too, was telling the truth during the sickness and health part.

In 1975 I’m pretty sure I didn’t give that part much thought. My main concern, if memory serves, was that I would inevitably, inexorably, somehow, someday bungle things up and land us in divorce court, Catholic-style. As to how I might screw up, there were numerous ways, but which one wouldn’t matter–any would do. I was kind of a slouch, marrying up to a woman with high standards and strong moral fiber. My main worry, besides the stifling heat, was that I wouldn’t be able to hold up my end of the deal.

So, 40-some years later, the sickness part arrived.  Since then, I have confirmed to myself that I was telling the truth in 1975. I am ready, willing and able to respond regardless of what sickness brings. I cannot imagine it being otherwise. I haven’t yet been called upon to do much, but I’ve created space in my life I can devote to my caregiver role without advance notice. No one knows how to do the everyday things the way she likes them. No one knows how to manage the home the way she likes it. Our local middle daughter knows and does it all but has her own uber-busy kids and life and job to manage. I am generally the boots on the ground.

Fortunately, my “giving” love language is Acts of Service, which allows me to happily do the numerous small things involved in keeping prescriptions on hand, an empty nest provisioned and financially afloat. We are now both officially on Medicare and Social Security, enmeshed in the safety net of public policy, and doing everything her doctor tells her to do. We are coloring within the lines, and she is exceeding most expectations by being in such good shape at this time.  I would like to take credit for her robust health, but that would be absurd and dishonest. She attributes it to the power of prayer.

So, as it turns out, we were both speaking the truth in 1975 and have lived it, per the terms of our original agreement, in full. It continues to work well. It has allowed us to transition from employed and long-lived to retired and dealing with a serious disease. It has changed the conditions of our relationship, not the content. The content, the essence, comes from decades of struggle and delirium and determination, the fruit being our three daughters, their families, and the privilege of assuming the role of Nanny and PopPop. Fast Eddie was the original PopPop for our kids, and I am but a pale imitation for theirs. Nanny has no such pretenders.

2017 has been, for me, a year of examining feelings, feelings about oncology, feelings about God, feelings about the Church, feelings about myself. And although I rarely feel as if I can hear God speaking to me, I can say that living day-to-day is generally low stress as long as I don’t allow myself to think about Life in the Future. The lesson here, and I’m a slow study, is to ask only for our daily bread and let tomorrow take care of itself which, for me, is virtually impossible, since I have put myself in charge of having tomorrow’s bread on hand today. And some idea of what the next day’s bread will look like. Protein, veg, starch.

To the extent we are discomfited by Nancy’s illness, we are comforted by being able to live day to day without pretense, almost always on the same page when it comes to her health. Trying to make things easier for one another. We are weathering a storm and have ridden out several other storms along the way. We are headed in the same direction.

As it turns out, when we spoke our wedding vows in 1975 we meant every word.  Who knew?

Couples struggling in their marriages might re-read their wedding vows, to see if they can remember how they felt when they originally spoke them. It might only take two minutes. It might take all night. Doing so might be balm on a series of relational wounds inflicted by life lived multi-tasking at 90 mph in the 21st century.

Doing so might remind us how we believed we were telling the truth back in the day.

May God shed His grace on you.

When God Turns the Tables

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Perhaps 15 years into our 42 year marriage, it became pretty clear that Nancy would outlive me. Women generally outlive men. She has always taken better care of herself than I have–better diet, more exercise, meditation, yoga, Sudoku. For me, this natural state of things was always premised on the virtual guarantee that I would, by predeceasing her, leave her to deal with the messy emotional and social fallout.   Similar, in many respects, to my point of view concerning the weddings of our daughters–they just seemed to happen on their own, and all I had to do was show up properly dressed with as few prepared remarks as possible.

Along with the diagnosis of late stage pancreatic cancer came this ridiculous possibility that I would outlive her. A scenario I had literally never considered. I recall having laughed out loud at my father, 14 years older than my mother and with his own cardiologist, who would occasionally wring his hands about what he was going to do when Mom was gone. His worries were, as expected, unfounded.  Mine, perhaps not.

[In fact, my concerns may be misplaced, just like my father’s were.  Nancy is doing remarkably well with chemo, her blood chemistry is all in the green, her weight has stayed up and she shows very little in the way of slowing down.  She doesn’t complain about her neuropathy the way she used to, especially during infusion week. My own health is “OK,” which is to say not perfect but not imminently dangerous.]

As an economist, I’m comfortable around statistics.  As a reformed gambler, I still figure the odds and go with what seems most likely. As (determined by StrengthFinders) someone who practices intellection, these statistics and odds and percentages bounce around in my brain.  I talk to Jesus about them in the Chapel. He reminds me we know not when nor where. I remind him of five year survival rates and the physical effects of long term exposure to chemotherapy.

Since Day One, Nancy has not wanted a prognosis attached to her condition, and has been more or less actively disinterested in her disease other than routine conversations with her oncologist. In this, her approach differs from mine, as I’ve always been more comfortable with a devil I know than one I don’t. But, as a spouse, I have recognized, out loud, that this is her journey, that I am beside her for care and support, that she will make these types of decisions–what and whether to talk about–and I will respect her choices.

old-couple in loveAnd so here is the point. The spouse with the serious illness gets to make these calls, all of them. How much to know and how much to leave unsaid. What to discuss and what not to discuss. The caregiver must willingly include these in the inventory of things about which you will want to talk less. If, as in my case, you find a need to discuss concerns you cannot comfortably share with your spouse, do what I do and talk to a counselor every now and again.

In the most recent ten years of our marriage, when we both worked, we had maybe 30 minutes in the evening to sit together and discuss the day’s events.  Now, we no longer have work, we have a few subjects that are off limits, and instead of 30 minutes we have more like 10 hours. Nancy has been more comfortable with these periods of sustained silence than have I, but I’m getting better. Spouses may want to prepare for these in advance, as they should not be misinterpreted as character flaws or a lack of bonhomie, as it were.

It has taken me awhile to understand God’s will in this radically-altered future of ours. This, what we are living, is God’s will. It is God’s will that Nancy carry on her lifelong interest in learning and teaching, and that she be allotted time to do so. It is God’s will that she can suffer in private and go out socially looking healthy and vibrant. It is God’s will that she have someone like me to hang around and take care of her. And it is God’s will that I have finally found a vocation, after decades of searching, that gives me a feeling of purpose and allows me to express my love language–acts of service–every day.

Life is not a bed of roses, and Christian marriage comes not without costs. But being married, at this stage in our lives, is a blessing beyond measure. If you are struggling in your marriage, it may help you appreciate each other by fast-forwarding the film 25 or 30 years, to an empty nest and a dread disease. For the sick spouse, you are unlikely to be able to purchase such loving care on the open market. For the caregiver, being in a position to uphold the marriage vows you made 40 years earlier is a great honor, likely held in high esteem by God. And no couples get there without weathering some serious storms along the way.cropped-lse-masthead6.jpg